Carrier.

Alpha1New  I saw the gastro specialist and got my test results: no blockages or scar tissue(from my gallbladder surgery) obstructing my bile ducts….but the genetic testing did come back positive: it turns out I am a carrier ( I inherited one of the defective genes from one of my parents. If I inherited two; that is, one from each, I would have a much more severe case) for the Alpha 1 antitrypsin deficiency, meaning my liver lacks the enzyme it needs for itself and the lungs in order for proper functioning, explaining my liver(eg. elevated enzymes, liver failure with my last pregnancy and Obstetric Cholestasis, gallbladder issues, abdomenal pain,etc.) and breathing issues and increasing risk for me to also have other related liver and lung conditions, interestingly also aneurysms, which I once had a dream was going to be my eventual cause of death: an abdomenal aortic aneurysm. The doctor said it’s also worsened by smoking( but I smoke weed rarely; I generally use the cannabis oil) and as I’m a carrier my kids have a 50% chance of also being carriers of the defective gene themselves, unless, of course, my hubby also happens to have passed on the same thing, although that’s highly unlikely as it’s fairly rare….that’s me, I’m always that rare one-out-of-a – million, unlikely statistic….

When I announced this to my mother a scowl came across her face in denial and the first words out of her mouth were a curt, Well, that must have come from your father’s side!! although the more I think about it I think it’s more likely that it actually came from her side of the family since there are several relatives on her side that have had both liver and gallbladder issues,incl. even cancers, and besides, she’s the one with the genetic issues given the inbreeding with both her grandparents and great-grandparents, both of whom married first and second cousins, so there’s also that… in any case, there’s no “cure”; just something chronic that I have to live with and I just try and manage the symptoms, such as milk thistle can ease the liver, diet(some people find wheat, gluten, or dairy-free helps them, or less gassy foods) can help with my IBS, Benadryl for the itching,etc.

This also explains why my entire life I’ve had breathing problems, get short of breath, am exerted easily, have that nagging cough,tightness in chest, etc. and this proves those gym teachers in school wrong who always accused me of just faking it, pretending I had a breathing problem when I said I can’t run around the gym or I get out of breath, dizzy and faint and will pass out…..they said it was just an excuse, and even my own family does as well and accuse me of just being fat and lazy and inventing some imaginary breathing problem as an excuse (why I can’t walk far, run up and down the stairs, do strenous stuff,etc.) but now I have validation, actual proof, a definitive diagnosis, an answer, an explanation. My hubby was happy as well less medical appt’s now too he has to drive me to because apparantly it’s such a big effort, hassle, burden, and time and effort for him to take the time to take me, even though he also takes my mother to all her appt’s and the kids to all their activities and has no problem with it….but anything for me is always such a problem….

My hubby also said he applied for another job but it’s in Ottawa so if he gets it we’d have to move closer to there so he can drive into the city there for work but due to our past trauma there we can’t live directly in Ottawa itself, but rather in another township nearby in close vicinity but not exactly in Ottawa, and besides, after the trauma we endured there I can never go back there again, let alone move back there and live there; that would certainly set back my healing and recovery and completely undo whatever progress I might have made over the years since we left. I just wouldn’t feel safe there anymore,anyway.

When I came back home after my app’t Buddy was so happy to see me as well; he always runs over and is excited but this time he was even crying when I came in the door; he was whining, running around in circles, wagging his tail furiously it was going ’round and ’round in circles like a propeller, jumping up at my legs for me to pick him up, it was so sweet and it was so nice to be missed and to be greeted like that. I know he loves me. ♥The 11 YR old said he was sad and mopey the entire time I was gone as well and just sat there on the stair landing or in front of the front door, head hung down, sulking, forlorn, waiting for me to come home.

 

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Sunflowers.

IMG_1380[1] Now it’s the long weekend in May and safe from frost traditionally I planted the sunflower seeds for my garden this year. I hope they work though and the birds don’t eat the seeds before they have a chance to grow. I have them poolside, leaning up against the fence. I’m looking forward to it so I hope they work, and I put an entire pack of seeds in, allowing for likely half to die so we’ll see how many flowers I end up with and if I die before they bloom in late summer then every time my family sees them they can remember me by my sunflower garden.Every time they see the sunflowers they can think of me.

We also had a BBQ and if today is my last day alive I had a good day; I planted sunflowers, I smelled lilacs; I spent it outside with the 11 YR old who was bouncing on the trampoline and when I took Buddy out for his walks the lilacs were out on the neighbours’ and I could smell their sweet fragrance every time I went by and I love the rhythm of the neighbourhood as I go on our walks too and don’t want to move. The girls tried to cut my hubby’s hair too only they forgot to put the clipper on the razor so now he has some bald patches(it’s really noticeable too but he can always wear a hat for a couple of weeks until it grows back in) and when I came home from church yesterday and got undressed I noticed I’d worn my blouse inside-out the entire time, but it was one of those gauze, flowy, embroidered “Peasant” blouses so it sort of looks the same way either way so hopefully no one even noticed…

Cupcakes The 16 YR old also baked these “sundae” cupcakes and most people thought they were too sweet but that’s the point. Buddy and I loved them. I also heard this song on my radio last night when I was in bed from The Who (one of my fave. bands) I recognized from when I was a kid and it brought back happy nostalgic memories and I wanted to get it for my iPod only I didn’t know the title and only remembered a few words from the lyrics this morning when I got up and they have literally hundreds of songs so it was really hard trying to find it and then the inspiration just suddenly popped into my head, Check under Pete Townshend…. as he was the main writer for most of their songs…..and sure enough, I found it! It was actually one of his  solo songs, and not from The Who as such, which was why I was having so much trouble finding it before as I was checking under the band name. The name of the song is Let My Love Open The Door, BTW, in case you were wondering.

I also see the gastro doc this week and he’ll have answers to my tests such as the scan to see if I do have blocked bile ducts or any other liver issues and if the genetic test came back positive for the liver enzyme that also affects the lungs so hopefully I’ll have some answers but I fear it’ll be the same as always; they’ll say that all the tests came back normal and still no explanation for my symptoms and pain…then the week after I see the cardiologist, the handsome Egyptian guy and I will be nervous and awkward for that app’t because he’s just so hot and I’ll be distracted and it’ll be hard for me to be able to concentrate on what he’s saying to me when all I can think about is how much I want to f*ck him and imagining kissing every inch of his glorious bronzed body….oh, my God…..

 

Liar, Liar.

PantsOnFire Remember that little rhyme from when we were kids: Liar, liar, pants on fire? That’s what was going thru my head today: last night I was looking out my bedroom window at 10 pm when I was up in bed as 2 police cars were across the street(and going from house to house with flashlights peeking in backyards) and some neighbours were loudly setting off fireworks( which made poor Buddy go ape-shit; he was shaking and scared and kept whimpering and hid under the bed) so I looked out my window to see what was going on(because I’m nosey like that) and I also happened to see at the same time the 16 YR old coming home from work walking home alone by herself in the dark at night which she knows isn’t safe and she isn’t allowed to do.She either gets a ride or the 23 YR old walks her at night.

Now normally my hubby picks her up but he decided last night for some reason he’d rather go see a movie than pick her up and she wasn’t able to get a ride home with anyone so she walked, even though she should have called a taxi as it’s just not safe for a female to be walking alone at night; you can get raped or killed….and when I confronted  them today about what I saw he told me that she told him she got a ride home last night, which was an obvious lie as I saw her with my own eyes walking alone, and when I asked her she told me that she never told him that; that he’s making it up….so either way someone is obviously lying and they both are compulsive liars I have caught lying many times before so now the dilemma is which one to believe? Which one is lying this time? Who is telling the truth? There’s no way to know since they both are known for lying and due to it I can’t trust or believe either one. That’s the thing with liars: once someone lies to you, you never believe them again.

This time, however, I have a “feeling” that it’s the 16 YR old that’s lying; she probably just told him she got a ride home so she wouldn’t get in trouble for walking home alone when she knows she’s not supposed to. Now she also has emergency taxi $$$$ in her purse to carry with her at all times as well from now on in case something similar happens again and she doesn’t have a ride; if for some reason she ends up stranded somewhere, whether at work or if out anywhere, with friends or whatever; if my hubby can’t pick her up for some reason, an emergency or whatever, and no one else can get her, or if the friend she’s with they have a fight or something and she gets ditched or if the driver’s been drinking, or whatever; it’s best to have the emergency $$$$ in case she has to call a taxi. She also doesn’t see the big deal or why I was so mad but I just want her to be safe and also one thing I won’t tolerate is lying.

MarkleDress The Royal Wedding between Britain’s Prince Harry and Meghan Markle was yesterday as well and although I didn’t watch it I was still eager to see her gown and I was disappointed that it was so plain, so simple.(My mother said it looked like a bedsheet) I was expecting something fancy(esp. for a Royal wedding) like with beads, pearls, sequins, lace, etc. on it, with intricate beading and detail and it was just so …blah… I was surprised and let-down. I expected alot more. I think Kate’s gown was nicer, but my fave. was Princess Diana’s; now she had a really gorgeous gown! Generally I’m not into the Royals but I have to admit I’d take a few peeks here and there and keep up on wedding details(although in secret as my hubby would make fun of me) as it is kind of fun to be a part of the excitement, and besides, weddings are big events for girls and we always love discussing the dress, and who doesn’t love a good love story, and a fairy-tale wedding where the girl marries her prince, am I right? ♥

Ponderings For Today.

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As well, when I was out walking Buddy, my hubby said my family doctor called me but I was taking too long so he said he’ll call back later today for a phone consult but I have no idea why as there’s no recent test results he’d ordered that we’re waiting on or anything , just the results of  tests that the specialists(gastro and cardio) had ordered and I’m seeing them next week and the week after so I wonder if maybe it has to do with one of those then perhaps, and that they sent a copy to him and he’s calling about some abnormal result of theirs that he just got a copy of that he wants to book further testing on to look more closely into, like maybe book a biopsy, a scope, a scan, or something…..? What else could it be? Now I’m really curious….

 

The Pepperoni.

Pizza So my hubby and the kids ordered pizza last night when I was in bed and this time they actually remembered to save me a slice. Often they forget, or they save me the smallest, dinkiest piece ever.This time though, it only had one pepperoni on it and all the others had been all picked off and I could tell as there were still imprints left indented on the cheese where they had been. I was mad(because I always get the crap) and when I asked my hubby what happened to all my pepperoni he just shrugged, You don’t even like pepperoni! but I told him he knows that I always pick mine off and give it to Buddy who loves it and he goes , It fell off…. and then said it was “payback” for when I plucked a pepperoni off the 11 YR old’s pizza he’d left out on his place setting at the table and gave it to the dog……even though he also failed to mention that it was left out there all night, out in the open, not in a bag, container or in any other protective covering and it was all hard and plastic-like and he wasn’t going to eat it and it would have just been thrown out anyways and I wanted to make sure Buddy got it before my mother tossed it out for the squirrels…..

That didn’t matter though; it was just an opportunity for him to get in a little “dig” at me, to be mean, to hurt me, to be an asshole,a shit-disturber, just to piss me off, like he always does and like how he always looks for,and jumps at, every little chance he can find to use to annoy me, only I was having none of it and then I just went and took a piece of pepperoni off a slice of his pizza that he was saving for his lunch and put it back on mine; just taking back what was mine, what he took from me…..and he was FURIOUS! He was yelling at me,berating me,calling me names, and really mad, so it’s ok that he did it to me but he didn’t like it when I did it back to him? Then he threatens that next time they get pizza he won’t save me any more, no more pizza for me,I’m a bitch, etc…. blah, blah, blah…. I don’t know who he thinks he is, but I’m not letting him treat me like that or control me like that. He’s not getting away with that shit. He’s such an asshole, and I don’t really want to say that I hate anyone, but he sure comes close, and is the one person that I severely dislike the most in the world. I have to get out of here. Please God, get me out….get me out of here….

The plumbers also came and fixed the leaking toilet pipes that dripped thru the ceiling and were luckily able to fix it the “quick fix” using a replacement part in just 3 hours for just over 300$. They said they weren’t sure at first if they could, and if not they’d have to tear out and replace the plumbing in the entire third floor which they said was not up to code once they started tearing further into the ceiling and exposed it when the third floor addition was put on long before we bought it and moved in and it would all have to be torn down and rebuilt,not only the plumbing but the entire third floor, costing thousands and thousands(when we just had a 2 bedroom addition put onto our old house it was 40K just for that but that was when we used to have $$$$), which, of course, we don’t have (and my bedroom’s up there,too, can you imagine going months without a bedroom?), and now I’m also wondering is it safe? maybe that’s why we have so many cracks and bulges in our walls and ceilings? Is the house structurally unsound? Is the foundation sinking and the house will eventually collapse or something if it hasn’t been built properly, will the third floor come crashing down onto the others?…..oh, shit, and I did notice a small sink-hole at one side of the house on the other side of the fence and the fence is leaning inwards,and how are we ever going to be able to sell it now? With our luck the entire house will likely get sucked into a gigantic sink hole….

My mother also always makes my hubby a special, separate meal when he doesn’t eat the same meal as the rest of us as if he’s royalty or something even though it’s not a restaurant and you eat what’s served or you go without(or get your own), except for him; she makes his own special stuff because he’s so picky and when I asked about it she coos, I take care of everyone when in actual fact what she really does is meddle, interfere and  take over everything,always with an ulterior motive, all the while acting like she’s some sort of martyr, and she goes out of her way and bends over backwards for my hubby,too, almost as if she’s trying to “win” him over, or impress him,getting him to take her “side”, and it’s so weird the way she treats him more like a son than she’s ever treated me like a daughter and how the two of them always stick together and gang up on me,scheming, and he’ll never stand up to her, either, or take my side or support me(and neither will she against him); it’s like they’re 2 evil partners in crime and I’m always the odd one out. He even tries to sabotage my bond with Buddy now too; he’ll purposely contradict any command I give him(eg. I tell him to Stay! and he’ll call him to Come!) to confuse him,lure him away from me, and to over-rule me and piss me off. I hate my toxic family. I wish I could just go away and never come back.

Is THAT How Normal People Do It?

BNormal Reading my Facebook friends’ accounts of their Mother’s Day celebrations with their families  such as getting cards, flowers, gifts etc. from their kids, phone calls, getting taken out to brunch or dinner, going sailing, being celebrated and told how they’re loved, having meals prepared for them, breakfast in bed, home-made treats, thoughtful gifts and gestures, signs of love, etc. made me say aloud to myself, Is that how normal people do it? ( to redeem himself though, yesterday the 23 year old did finally wish me a belated Happy Mother’s Day and gave me a hug; he said he got the days mixed up and thought it was yesterday) which is something I often find myself saying, thinking, or wondering,often aloud. I compare my crazy dysfunctional, f*cked up family to other people, Is THAT  what normal people do? Is THAT how normal families are? Is THAT what normal people say? Is THAT how normal people are? etc. You get the idea. It always surprises me how completely different other families and other people are from us, how different the dynamics are, how differently they function, how differently they relate to eachother, how differently they do things, how differently they live, and it always leaves me feeling lacking, a loss, a sadness, a longing, and a yearning for the love, encouragement, support, validation, praise, acceptance, inclusion, kindness, belonging, compassion, understanding, security, closeness, bond, and unity I don’t have with my own family.

As well, the 11 YR old finally beat the 15 YR old at a certain video game so it’s now officially been decreed by all the kids that he’s now a Main Character(and no longer a Dog)…yeah…..don’t ask…..I’m not even entirely sure,either; it’s just one of those things my crazy family does…he passed his Main Character Test…. and for the past 3 days I’ve been on IB Gard, which is  a natural formula for IBS, mainly concentrated peppermint  oil that soothes and eases out the kinks and spasms in the abdomen and it seems to be working: I haven’t had the abdomenal pain since and as soon as I notice it flaring up or cramps beginning I take 2 pills and it lets up, so we’ll see, but it looks hopeful….yes, yes. yes…. I have a nice, deep dark tan now as well being outside every day and feeling the warm sun on your face is the best feeling in the world.It’s a gift from God, and it’s free!

Screenshot_566 My Facebook friend in Brazil’s baby also turned 2. Here she is. She’s just so cute. She just keeps getting cuter and cuter all the time. I just had to post this. I can’t believe she’s 2 already. Can you believe she had her when she was like 45 or 46? I also decided that sometimes you just have to live in the moment and those are the best memories, and Buddy woke me up during the night last night,too, furiously pawing at my face and whimpering, and I remember I was coughing so I wonder if I was maybe having a seizure in my sleep again and stopped breathing or something(or choking on a feather from my pillow, perhaps?) and he was trying to revive me, knowing something was wrong? I just love that dog so much. God knew exactly what I needed when He sent him to me. He’s my best friend and my co-pilot in life. Everyone needs someone to walk beside them along the road in life, like Paul had Silas; I have Buddy. He walks along beside me in my journey and is my right-hand man. There’s always a spot for him next to me.

I also had this scary nightmare that the volcano in Hawaii on the news the entire thing blows, and not only that but the entire chain of volcanoes along the Ring Of Fire along the Pacific Coast erupts, and the rumbling during the eruptions then causing massive earthquakes and tsunamis and flooding, decimating the coastlines all along Asia, Australia, and North and South America,; it was catastrophic, like we’ve never seen before, like in one of those doomsday end-of-the-world movies.It was horrible, countries sinking into the ocean, and all those people, millions and millions of people…

Our Mother’s Day.

HippoMothersDay Our(my mother’s and mine) Mother’s Day yesterday was pretty much just like any other Sunday, or any other day for that matter, other than the fact that we got the typical sappy cards(that we adults actually bought for eachother and pretended was from the kids, and that contained gooey love messages that none of us really feel) but the kids never drew me any home-made cards though( even though they do for my hubby for Father’s Day and for eachother for birthdays, just not for me) and, in fact, none of the kids even bothered to wish me a Happy Mother’s Day. Not even once. None of them even uttered the words.No one said it at all. Only my mother and hubby did. Not at all, but 2 neighbours did, when I was out walking Buddy one of the neighbour’s teen girls wished me a Happy Mother’s Day and the old guy I talk to that lives across from church came across the road to wish me a happy one which I thought was thoughtful and kind, esp. considering my own kids didn’t even bother, proving once again that total( Or not quite total) Strangers care about me more and treat me nicer than my own family does.

We also had KFC for dinner so neither my mother or I had to cook and she got a bouquet of flowers at the grocery store for us to put on the table.Not the kind I like, just a cheap 10$ one with mums that neither of us like but they were the cheapest and with a few carnations thrown in that she likes but I find are boring and plastic-like and have no smell and secretly I was wishing It would have been nice if these had been sunflowers…. My hubby got me this funny Dachshund card from Buddy as well which is fitting too because he is like my baby and he’s the only one in my family that really does love me,anyway, and I got the funky shoes that I’d picked out and I gave my hubby the bill. That’s how he buys gifts.That way he knows I like it.

. Even the kids that have moved out still never even bothered to phone or e-mail me any Mother’s Day wishes. My mother said she was upset that the kids never said Happy Mother’s Day to her either( even though I did) even though I told her that they’re not her kids though; they’re mine(and they never said it to me,either), but she’s always taken over and acts like they’re hers and expects to be treated like some kind of martyr. In church they also had  special prayers for mothers yesterday we all. It’s really just a day I prefer to get over with, a reminder of something yet again I’ve failed(even though it was my vocation and my dream, and yet something else that didn’t go as expected or work out the way I thought and ended up to be the total opposite and I end up disappointed and disillusioned) and that someone in my family will usually ruin for me anyway or use to remind me how much I suck as a mother.

I also had a portion of a perfect day last night; not the entire day, just a few minutes, a few peaceful, perfectly still, quiet moments. I woke up in the middle of the darkness and stillness of night with Buddy  beside me, and it was so still and quiet; there wasn’t one single sound.It was like the entire world had just stopped, just shut down momentarily. I couldn’t hear a thing, it was so still and quiet. It was peaceful and tranquil, leaving me alone with my thoughts and God. I couldn’t feel my heart beating either and for a moment there I even wondered if I was dead. It was such a perfect serene moment that I just wanted to capture it forever and I was so content and cocooned in my silent world I wish I could have just stayed locked away in there forever and kept it frozen like that for always. It was like a little gift from God, a small glimpse of peace. I wonder if that’s what the world is like for deaf people?Pure silence….